Advantages It's not the worst illness for your child to get
Disadvantages Its lifelong
I am writing this on the offchance it may assist others.
My daughter has neonatal hypothyroidism...sounds scary doesn't it? well it did the first time we heard it. Anna was just 2 weeks old when we were first sent to Alder Hey.
A week after her test and me having forgotten all about it I was shocked to be called to Alder Hey childrens hospital regarding her thyroid.Once there further tests were conducted and the diagnosis confirmed.
You can expect your child to undergo an ultrasound, firstly a dye is injected and time allowed for it get to the thyriod, be prepared its not a pleasant procedure and in small veins it can be difficult, it may result in them needing to go in through a vein in the scalp...if offered this choice jump at it..its quicker and easier in most cases but can leave a bruise.
Once the dye has worked its way round you will be taken in for the scan, your child will be laid on the table and the scanner lowered to their neck area (watch out if the baby is breastfed as he/she will probably try to latch on to the camera!)
A TFT (thyroid function test) will also be performed, this is a blood test and will check the levels of thyroxine in the blood.DIAGNOSIS:
Ok so its confirmed, you are at home and have the thyroxine. Remember that it needs to be given at roughly the same time each day and that the correct doseage should be administered....if left untreated then your child could develop cretinism but if treated then no obvious differences will be seen.
Your child will need TFT's at your local hospital..frequency depends on age.
0-12 months- once per month
12-24 months- once every 2 months
3-5 years- approx once every 3-4 months
Remember that when your child experiences a growth spurt its always wise to have an extra test if its a while off your next is due.
SIGNS TO WATCH FOR:If your childs thyroxine is low and the doseage needs amending these are signs you will probably notice:
Remember that other things (such as teething, common colds etc) can also cause some of the above but use common sense and eliminate them. If unsure continue with doseage and monitor, if no change then get booked in for another tft.
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