Missing Factor: A Personal Experience of Haemophilia - Marie Berger

Haemophilia? It's hard enough to spell, let alone explain. When our third child, Nathan, was diagnosed with the condition at the age of 21 months, for a time our world collapsed. These were pre-Internet days and you couldn't just Google "haemophilia" and find all you needed to know about it. In fact, dredging through our collective memories, all we could find were the facts that a) it had afflicted members of Europe's royal families and b) if someone with haemophilia scratched themselves they could bleed to death. End of previous "knowledge", of which only the first part (mercifully) was ... more